Wednesday, December 31, 2008

Return of the Reflux

Well, last night did not go as we hoped.  It's 9pm and we are still in our PJs.  Poor little John had a pretty bad case of reflux and gas during the night and most of the day.  On the bright side, he started doing better after Daddy gave him some Mylicon.  Our pedi does not believe it helps but says it does not hurt either.  We decided to try it after a lot of parents recommended it and because we were pretty desperate.  We did not like to see John in pain.  Thankfully, it appears to have worked.

John feeling much better.
There will be some video as soon as I figure out how to add it. 

Tuesday, December 30, 2008

An Important Day

Praise be the Lord!  (And Ticia for the hints!)

John slept 3+ straight hours last night in his bassinet.  We usually need to hold him for him to sleep more than 30-60 minutes.  We altered our feedi
ng routine: instead of changing his diaper, feeding him then putting him to bed, we immediately fed after he woke up, changed his diaper before switching sides which woke him up causing him to eat more, then put him to bed bundled up.

We are also trying some advice from the book On Becoming Baby Wise a gift from Ticia.  After trying them, John calmly stayed in his bassinet for 1 hour while I took a nap.  He also slept AGAIN the whole time between feedings in his bassinet!!!   We are trying not to get too excited about what this might mean for nights.  We know it may not work at every feeding right away but are hopeful.

Today was also noteworthy for another reason.  We took John to pay his respects to his grandfather and uncle.  It was emotional and difficult.  After Granddad John was diagnosed with cancer 12/22/04, he would tell us all he wanted was to make it to meet his grandchild....  Sadly, life had other plans for all of us.  But we are reassured in knowing that he would have loved John so much.

Matt talking to John about his grandfather.
We took the time to tell John stories about his grandfather and uncle.  We plan on John "knowing" them through us.

John hearing about his uncle.

Monday, December 29, 2008

On Our Own

We are on our own again.  The grandparents, Aunt Lari and Uncle Tony left today for El Paso.  Aunt Pau went back to her apartment.  It's now just Daddy, Mommy, Sandy and Bevo taking care of John.  It's been less than a day and we already miss all the extra arms to care for John.
An exhausted Uncle Tony and John

John with Abuelito

Mommy & John with the Grandparents, aunts and uncles

Daddy stayed alone for the first time with John this evening while Mommy went out to dinner with our friend Anne to celebrate her engagement.  Unfortunately, John took this time to act out for the first time.  He refused to be comforted.  He stayed awake and crying/fussing from 6pm - 10 pm.  Thankfully, he is finally sleeping after a change in clothes and being swaddled. 

This is before John decided to act up.

We believe he may be going through a growth spurt since he is eating every 1.5 - 2 hours since yesterday.  This made last night a little difficult.  We are trying a few tips from my friend Ticia tonight; hopefully we will get a little more sleep tonight. Wish us luck!

Sunday, December 28, 2008

Bubeaner Headquarters

10 Weeks! 

Bubeaner is now 10 weeks 2 days.  We are blessed that he is now, for all intents and purposes, a healthy preemie.  Caringbridge was an amazing tool that helped us keep family and friends informed.  And it allowed us to feel and know your support during a stressful time.  Thankfully, it has come time for us to "graduate" from Caringbridge.  Dad and Momma decided to start a blog to continue to keep you up to date with Bubeaner as he grows up. 

Wednesday, December 24, 2008

Wednesday 12/24/08

Wednesday, December 24, 2008 10:17 AM, CST
John is doing ok - he is still spitting up but he is eating well and enjoying being spoiled. We want to wish all of you a wonderful holiday and a very happy new year. We love you all and appreciate your support so very much.


Sunday, December 21, 2008

Sunday 12/21/08

Sunday, December 21, 2008 11:56 AM, CST

John is spitting up quite a bit, has diarrhea and is fussy, but he is enjoying having Daddy home full-time for a couple of weeks and spent yesterday getting spoiled by his Aunt Pau and Uncle Jeff. The house is full of Christmas lights he finds fascinating. Merry Christmas to all.


Thursday, December 18, 2008

Thursday 12/18/08

Thursday, December 18, 2008 11:31 AM, CST
John's pediatrician says this was just a bad reflux incident and that John will be fine. He is still a preemie, which is hard to remember, but his due date was Christmas Eve. He is confident John will be ok.

Wednesday, December 17, 2008

Wednesday 12/17/08

Wednesday, December 17, 2008 11:53 PM, CST

John abruptly stopped breathing tonight and turned blue. Ruth began performing mouth-to-mouth and Pauline called 911. John regained his respiration after about 2 minutes and his color after about 6 minutes. The paramedics cleared him and the doctor wants to check him out in the morning.

Monday, December 15, 2008

Monday 12/15/08

Monday, December 15, 2008 3:05 PM, CST

John is continuing his difficult-night adventures, as evidenced by the new picture of Mommy keeping him upright at night on the Welcome Page. Tonight we are going to try giving him Axid to reduce his reflux. We're down to Mom, Dad and 1/2-time Aunt Pau (who is mostly moved out but still helping out) at home to keep John company. He misses his NICU girls very much.



Saturday, December 13, 2008

Saturday 12/13/08

Saturday, December 13, 2008 7:30 PM, CST

John had a rough night last night with reflux and kept his parents up all night. We kept him elevated today and it seemed to help. He is busy stealing Sarah, his Uncle Ivan's girlfriend, now. Thanks to the FW Haltoms for bringing a pot roast over for dinner.


Friday, December 12, 2008

Friday 12/12/08

Friday, December 12, 2008 11:27 AM, CST

After a rocky couple of nights, John had a good night Thursday night. He had multiple vaccinations and a clean bill of health from his pediatrician on Thursday. Dr. Wheeler is giving him Axid for reflux but otherwise he is a healthy boy. New pics being posted.


Wednesday, December 10, 2008

Wednesday 12/10/08

Wednesday, December 10, 2008 3:56 PM, CST

John is home! Mom and Dad spent Monday at 5pm through Tuesday at 2pm at the hospital with him in a closet-sized room without windows before obtaining their freedom. John has been a little fussy after vaccinations and the drastic change in scenery but is adjusting to his new dogs and environment well. Mom and Dad are exhausted but thrilled. Aunt Pau has fallen in love with her nephew.



Monday, December 8, 2008

Monday 12/08/08

Monday, December 8, 2008 4:56 PM, CST
John is now at 6 lbs 9 oz.


He passed his car seat test, although, it was close towards the end. He does not tolerate delays in his meal times (just like his Grandpa John) not even for a car seat test. A little "sweeties" (sugar water) on his Paci helped pass the last 20 minutes.

Dad and Mom are off to the hospital for their first full night with John. =)


Sunday, December 7, 2008

Sunday 12/07/08

Sunday, December 7, 2008 10:22 PM, CST

Holy atomic news, Batman!

We are rooming in tomorrow night! During rooming in Mom and Dad stay in a hospital room with John and are completely in charge of his care with the NICU nurses as backup. Once that's completed John would be discharged. That means that John could be home by Tuesday evening!!!

Tomorrow he will have his car seat test (making sure he maintains his heart rate in a seating position) and probably his Synagis RSV vaccine. He had the second Hep B vaccine today. So John was a little fussy and uncomfortable.

He is 5 lbs 7 oz today.

Our little boy is coming home!

Saturday, December 6, 2008

Saturday 12/06/08

Saturday, December 6, 2008 11:18 PM, CST

John enjoyed a quiet Saturday. He continues to gain weight, now up to 6 lbs 5 oz! No episodes last night nor today. =)

Mommy and Daddy spent the day reorganizing the house (furniture/rooms/etc) in preparation for John coming home soon.

Friday, December 5, 2008

Friday 12/05/08

Friday, December 5, 2008 11:59 PM, CST

7 WEEKS!!!

WOW! John is 7 weeks old today!

Our little bundle of joy now weighs 6 lbs 5 oz. Yes, he is heavier than some term newborns. John has officially outgrown his preemie clothes.

He did not have any incidents last night or today. He still has some drops during feedings because he gets impatient. However, those are not the ones that concern (scare the living daylights out of) us.

The nurses are starting to mention possible discharge dates. And though delighted, Mommy is panicking (FREAKING OUT). But John appears to be ready to come home.

Thursday, December 4, 2008

Thursday 12.04.08

Thursday, December 4, 2008 10:27 PM, CST
John continues to improve, grow and get cuter!


He gained 19g from yesterday. He has outgrown several other preemie outfits and is now wearing a few newborn onesies. He did not have any episodes last night and today. He is also spending a little more time awake and alert.


Daddy did an excellent job bathing John today!

We are hopeful that he will continue to improve and come home soon.


Wednesday, December 3, 2008

Wednesday 12/03/08

Wednesday, December 3, 2008 7:07 AM, CST
Tuesday was a good day for John. He weighed in at 6 lbs 1 oz! Mommy was able to assist RN Susan with bathing him. He really is enjoying baths now.


The echocardiogram results came back. His heart looks good except for the cause of the murmur. He has Atrial Septal Defect (ASD) which means his heart has a little hole (3mm) between the left and right atrium. The neonatologist mentioned this is not unusual in preemies; however, it's usually closed by John's age. It may still close on its own. We'll see a cardiologist in 2 months to make sure it did close.


In the mean time, John continues to improve. He was taken off the pulse oxygen monitor yesterday. It's one step closer to going home. The doctor also decided against thickening the breastmilk because he is overall doing much better with reflux. She stated the reflux issue appears to be more due to immaturity and is improving.


Wednesday, December 3, 2008 11:19 PM, CST

Our little chunky monkey is now up to 2810g (6 lbs 3 oz)! He had one incident earlier today, but otherwise has done well without the pulse oxygen monitor.


We did have our first experience with projectile vomit today. Thankfully, it appears to be a one time incident. (Daddy was relieved that it was not pea green and that his head did not rotate 360.)


We are hopeful to have him home by early next week.

Monday, December 1, 2008

Monday 12/01/08

Monday, December 1, 2008 11:02 PM, CST
John was a little fussy this morning (very unlike him). He wouldn't settle down and was pretty restless thru the feedings. He mainly wanted to be bundled and held. Thankfully he was much better by the evening.

He continues to have little drops in heart rate and O2 levels. He mainly resolves them on his own and some of them are so quick the monitor alarms don't go off.


The doctor ordered an echocardiogram today to double check on John's murmur. Murmurs are quite common in premature babies; she just wants to make sure it is just due to prematurity. We receive the official results tomorrow.

Since John is continuing to have reflux, the doctor is considering adding something to the breatmilk to thicken it up. From what the nurses tell us, these "additives" are not readily available and are expensive. Ironically, this would be less of an issue if he was on formula. Go figure!


Thankfully, John continues to grow and get more beautiful. And he is getting the cutest cheeks!

Sunday, November 30, 2008

Sunday 11/30/08

Sunday, November 30, 2008 2:59 PM, CST

The bad news: John had a bad episode last night. His heart rate dropped, he turned blue and he needed both stimulation and oxygen to bring him back to normal. He continued this morning having heart rate drops but brought himself out of them. This will likely keep him in the NICU this week.

The good news: John is doing better this afternoon and is up to 5 pounds 15 ounces. He has had no feeding tube for a week and is still gaining weight. He just needs more time before coming home. Tammie bought him a build-a-bear with her voice message on it so he will not miss her as much when he comes home.