Another busy day.  John slept until 7am this morning!  We had been waiting until John was sleeping through the night regularly before we moved up his bedtime.  We knew eventually he was going to have to go to sleep earlier than his current bedtime of 9 pm.  However, John did not wait for us.  For the last few days, he has been getting fussy and really sleepy by 730p.  We know it would probably mean more sleep for us as well as more alone time.  But it's also sad because Matt won't get that much time with Bubeaner.  So, we have decided that mornings will be their special bonding time.  This is an added benefit to me since I am most definitely NOT a morning person unlike the boys in the family.

Matt is doing better.  The inflammation appears to have subsided enough to at least allow him to walk a little better.  The pain is still pretty bad on his back especially after a long day at the office.  We are hopeful that the medication continues to help.

John gardening with mom and playing with his lovey.

This was at the end; he was tired.

We continue to miss our Bevo.  But I have to admit that it's been nice not worrying about when he will start howling again.  I notice I cringe in "expectation" as soon as I hear the trash pick up, the mowers, and even the kids playing outside.  Today I was able to work on the front garden, even planting a rose bush. (YAY!)  Sandy was on a long leash tied to the car and John was in his bouncy out of the wind and under multiple blankets.  Several neighbors were able to come by and talk.  Usually that is not possible because Bevo will not allow anyone to get close without sounding the alarm.

John playing with his friends.

He has long conversations that usually end with him trying to eat them.

YIKES!

How did almost a week go by without a blog entry?  Time is in warp speed at home.  My boys are keeping the entire household busy, busy, busy. 

John has been sleeping every night since Wednesday until 530am or 6am!  YAY!  We are still not reaping the benefits because we continue to wake up and check on him throughout the night.  The surgeon, Dr. B., declared that John's fissure was healed.  Unfortunately, John continues to have occasional blood in his stool.  And since yesterday, he has been pretty fussy; it appears to be a GI problem since his reflux/throwing up has returned... maybe something I ate?  We don't have to go back to see Dr. B. since we are seeing Dr. S., a gastroenterologist, within the same Cook's group next week.

Mmm, yummy

Our Bubeaner is not letting any issues slow him down.  He now prefers to sit rather than recline.  He looks quite adorable trying to sit up.  And it appears that he is now enjoying tummy time... well at least not disliking it as much.  There are times when the session does not end with him screaming and crying.  

Hey, what happened to my cartoons!

His new trick is to grab his blanket or lovey and pull it over his head and down.  It's not peek-a-boo, but it's cute.  He also tries to put everything in his mouth.  Today, he grabbed his paci and placed it his mouth!  Granted it took him about 5 minutes and multiple attempts (he had trouble with the grasping and holding), but it was amazing to see him doing it.  

Look at what I can do!

John is also playing more during bath time.  We had to get a caddy to hold the increasing number of toys.  He enjoys pushing them with his feet.

Splish! Splash!

We heard back on Thursday regarding Matt's MRI report.  Unfortunately, our PCP was correct; it's a herniated disk that is impinging on a nerve.  That explains the leg pain and limp.  He had an appointment today at a spine clinic.  The doctors are not recommending surgery at this time.  But he will be getting a steroid epidural shot to the affected area to reduce the swelling and inflammation.  After that is under control, he will start a round of physical therapy.  But it appears that this will not go away.  

Squeezable cheeks!

As to the other male in our family, Bevo started puppy boot camp on Saturday.  Matt and I had discussed enrolling him often, but hesitated.  He was immediately enrolled when he destroyed two expensive window coverings this past weekend.  Bevo is a loving and adorable dog.  He is actually quite well behaved... as long as he does not believe someone or something is invading his territory.  He does not bite; he just howls his head off.  We spoke with his trainer today and Bevo is making great strides in the howling department.  We are so, so hopeful that this help.  It would be nice for others to see his good side and gentle nature.  

Hey, this isn't the way to the vet or the pet store.

Bevo sensing something was not "right".

My Boys

WooHoo, Bubeaner!  John slept until 530 am!!!  He fussed a little here and there throughout the night, but mainly slept.  And he woke up in a good mood smiling and cooing even though I am sure he must have been starving.  The only problem is that he has been fussy ever since.  It could be because his schedule is off.  We'll see how the rest of the morning turns out.

This morning, at 630 am Matt had his MRI.  The tech would not hint as to the probable diagnosis, but made sure to say  Matt needed to be very, very careful moving around.  So, we now awaiting the call from the doctor.  We still hope that it's not that bad.  

Better Tuesday

John is coughing less today.  WooHoo!  He is almost back to his normal napping routing also; he had been sleeping a lot more the last few days.  Right now he is "conversing" with President Obama.  He was particularly vocal when the matter of taxes was brought up.  

We forgot to mention that the ID doctor still heard his murmur yesterday.  John's cardiologist appointment is not until next week.  It is not something to worry about yet, but we were hopeful that the PDA had resolved by now.  John has another doctor's appointment this week, a surgical follow up.

Matt is doing better.  At least he is not walking like he is 109 years old... just 90.  The pain is still pretty bad.  So, he is scheduled for an MRI tomorrow morning.  Hopefully, it won't be as bad as the doctor expects.

If you could, please send up a little prayer for a little boy, Stellan, that really needs all of our prayers right now.

Manic Monday

We did not start this week on the right foot.  Sunday we finally tackled the front yard after ignoring it for almost a year due to bed rest and the Bubeaner's birth.  It is starting to look good again.  Unfortunately Matt hurt his back lifting Bevo, our wild dog, after he got tangled in one of the bushes.  After a painful and restless night, the doctor believes it might be a herniated disk in his lower back.  He is still in a lot of pain, but hopefully he will feel better tomorrow.

John is still improving but continues with the cough.  We took him to an infectious diseases doctor (another doctor added to the list) today for his RSV vaccine.  Dr. G. was quite wonderful and thorough in her examination of John and his record.  Much to our dismay we found out that our previous pediatrician had not given John ANY RSV vaccines as he had assured us he would in the NICU!!!  I am angry with myself for not catching that earlier, but definitely reassured that we made the correct decision switching doctors.  

Daddy and Bubeaner at the home & garden store.

Our little Bubeaner is a little cranky this evening probably from the vaccine.  But that has not stopped him from playing with his feet.  Yes, he has found his feet.  John is still not sure what to make of them but he does spend quite a bit of time staring and them while flexing and moving them.  John's favorite game is to touch the opposite side of the tub with his feet; the splash is an added bonus.  He is also getting better at grabbing things and, of course, putting them in his mouth.  He is also doing quite well with his tummy time.  Our baby boy is growing so fast.

Bubeaner's answer to the Mommy paparazzi.

Also on a good note, John has reacted much better to the multi-vitamin this time around.  He is a little more likely to throw up after his dose in the mornings, but doing pretty well overall.  In fact, his reflux is doing pretty well too.  There are times when he doesn't even sport a bib now!  This would have been unthinkable a few weeks ago.

A styling John carried by Aunt Pau.

Now for Show & Tell: Blessings.  Today I ordered John's "NICU Graduate" onesie for our March for Babies walk.  He will look so cute in it!  We are pretty excited.  I had participated in years past, but it is much different this time.  Their work is not about statistics anymore.  Their work has a name and a face very dear to us: our Bubeaner.  Matt and I feel extremely blessed that John will wear this onesie because, sadly, not all babies graduate.  If you have a moment, please remember the NICU babies and families in your prayers.

John's NICU graduate onesie.

Mommy and John registering for the march online.

March for Babies 2009 - Our First Walk Together

Matt and I prayed and hoped for a child for many years.  Our prayers were answered 04/09/08 when we found out we were pregnant.  We rejoiced in every aspect of our pregnancy.  Much to our surprise, we met John 10 weeks earlier than expected.

We counted the number of John's doctor's: 7 (neonatologist, pediatrician, cardiologist, gastroenterologist, pulmonologist, sugeon, and ophthalmologist).  John is 5 months old and has 7 doctors!  And he is one of the lucky ones because other than being little, he is healthy and thriving.  Many more are not so lucky.

You supported us through the pregnancy and John's early arrival through prayer and encouragement.  We now humbly ask if you would sponsor John and I as we take part in our first March for Babies on April 18th.

The 5-mile walk is sponsored by the March of Dimes.  The money we raise will support research and programs that help moms have full-term pregnancies and babies begin healthy lives and to provide comfort and information to families, like us, whose baby was born too soon or sick.

Please help us make a difference.

Thank you,

Ruth and John

Sick Bubeaner Update

John had a great night.  He slept soundly until 430 am when he ate and went back to sleep until 730 am.  John appears to be doing much better today even though he is still coughing a bit.  John is still not up to his usual perky self but getting there.  If only his parents bounced back so easily. 

John and Daddy napping.

Sick Bubeaner

Our poor little Bubeaner is sick.  He sneezed on and off for a while last week, but on Wednesday he started coughing and has progressively coughed more since then.  Thankfully, it is a dry cough and he does not have a fever.  So it appears that he caught our cold.

He had a nice relaxing bath with baby vapor bath stuff followed by a rub down with baby vapor rub and a little Tylenol.  The hardest part was doing the saline solution drops and clearing out his nose.  He screamed his little head off in anger.  But we believe he is feeling better now as he is sleeping soundly in his bassinet.

Yes, he continues to sleep in his bassinet.  He refuses to even take naps on his bouncer.

We are also using the UV humidifier in the room.  Matt complained that it feels like Houston.  As I am also feeling unwell, it feels great to me.  We are hopeful that John will come out of this soon and with no further complications.

Big Boy Bubeaner

For months John refused to sleep in his bassinet.  A few weeks ago he allowed us to place him in it for a few minutes at a time, but still no sleeping.  Yet last night John refused to be placed in his swing.  He fussed even while I held him.  

Yet, lo and behold, I placed him in the bassinet and he fell asleep immediately!  John slept in his bassinet all night long even after his night feeding.  He did not even want to be held after his morning feeding.  

Bubeaner and his turtle

And I was just holding him a minute ago and he fussed until I placed him in the bassinet.  He is currently cooing and playing quietly.  He is growing up way too fast.  Does anyone know where I can find the "pause" button?

Mad Bubeaner on our way home to the airport.

Unfortunately, John started coughing yesterday.  It is not a lot, but the cough does not sound good.  We are hopeful that it's not anything major.

Long Catch-Up Entry part II

Tuesday we took another sample to the pediatrician's office, and it tested positive for blood again.  Our pediatrician was not in the office, so his partner recommended we change John's formula (one used for infants with a protein allergy)...  and stop breastfeeding!  It was extremely hard not to breakdown and cry in the office (the lobby since I didn't go into a room) .  It was hard to get my milk supply going while John was in the NICU.  And I had worked hard to adhere to the lactose/dairy-free diet and I was still harming him.  ARG!

After much discussion and deliberation, a week ago we made an appointment to transfer to a new pediatrician.  Thankfully, we had our first appointment today.  We feel comfortable with our choice.  Dr. Z was extremely thorough in her examination.  I was pretty impressed that she had read all the paperwork we brought with us and listened carefully to what we said.  Dr. Z had even read the HIPAA forms!  She believes it may be a dietary issue AND a fissure (after she finished her examination).  She explained that soy may also cause an allergy;  I had recently started drinking soy milk since I couldn't drink regular milk!  No one had told me to avoid soy.

Dr. Z recommended we continue breastfeeding since John benefited from it but continue to use the new formula when needed.  We will make an appointment with a GI doctor just for peace of mind.  She also put us back on Poly-Vi-Sol (the multivitamin) in order to protect John from an iron deficiency.  We will give John the daily dose in small portions before several meals to avoid any reflux problems.  All in all, we left reassured and confident with our new pediatrician.

Somehow we failed to mention that yesterday John turned 5-months old!  He is so adorable and is doing great.  He now weighs 11 lbs 12 oz!  He is in the 30th percentile for weight and length adjusted for his prematurity.  But, he is in the 80th for his head!  It helped explain why he was having trouble holding his head up on his own.  

John holding his bottle!

He has now found both hands and both thumbs.  However, John still prefers his pacifier.  Yesterday, he found and grabbed his foot for the first time.  He has also reached out to grab my fingers multiple times!!!

Enjoying his right thumb...

... and now his left thumb.

 And Monday night John slept for 8 long, wonderful hours!!!  He was back to his normal one-feeding-at-night routine yesterday.  But it means that he is getting ready to sleep through the night.  John does something new almost every day!

Lari enjoying the thrills of  being an aunt.

John also talks his head off.  He will conduct a conversation with anyone and anything that catches his eye.  If everyone is talking, John will not hesitate to make his voice heard.  He is so "talkative" already that I am worried about how much he will talk when he learns to speak.

Chillin' at the hotel in DC.

Mixed Blessings (Long Catch-Up Entry)

Home Sweet Home!  How wonderful it is to be back home!  As Matt had updated earlier, we had a great time in Washington, DC.  And John was such a great traveler.  Granted we did take care to keep certain aspects of his home routine intact such as eating times and night time routine which includes a nightly bath and his turtle light.  Yes, we traveled with a 12"L x 5" W x 3" H turtle night light.  John loves to stare at it as he falls asleep.  He was not fussy at all during our day (and even our one night) excursions.  I never considered myself a "granola mom"  but one of the concessions I made was (much to my surprise) to feed him while we were at some exhibits (Constitution and Holocaust museum).  Do not worry; I made sure no one got flashed.

John sleeping in his car seat during one 

of the many taxi rides around DC.

We used the rain cover as a windbreaker.  

It was perfect! 

John and Mommy at "Tombs" in the Georgetown area.

The flight to El Paso was not as uneventful as our flights to and from DC.  But considering how tired Lari and I were, John held up nicely.  Thankfully the plane was small and the engines quite loud.  I doubt many heard him cry.... At least that is my hope.  (In any case, it was better than our flight back home where John cried incessantly from the moment I stepped in the plane until we actually started flying.  Of course, it was also the flight where we had decided not to book an extra seat for John and it was completely full.  Amid the nasty loud comments I overhead mainly from women, a wonderful ANGEL took pity and helped me.  She made all the difference!)

Matt and Lari on the flight to DC.  

John and I sat together.

John flying to DC.

He was wonderful the entire flight!

John and all the grandparents delighted in this visit.  John and I spent Tuesday and Wednesday at Grandma Ellen's home in Las Cruces.  He immediately recognized her and took full advantage of the extra attention.  Grandma Ellen showed John off to her close friends.  And John slept for the first time in his father's old room.  

John meeting Grandma Ellen's canasta group.

Grandma Ellen helping bathe John.

Grandma Ellen letting friends know John was in town.  

John loving on his grandma.

We spent the rest of our time in El Paso meeting the many, many family members that had not yet met John.  John met his great grandmother "Bis-Bis" Mali.  I pray he will get many more opportunities to visit with her in the future.  I loved reconnecting with my aunts, uncles and cousins.  John will have so many playmates as he grows up as Bis-Bis has 18 great grandchildren (and one on the way).  John also spent time with his grandparents "Bito" Pepe and "Bita" Ruth.  My father had not been able to see John since he had been born!

Four Generations!

John smiling while Bita holds him.

John enjoying cuddling with Bita Ruth.

John lounging on Bito Pepe.

To Be Continued....

John John Goes to Washington

John is officially a jet-setter, joining Mom, Dad and Aunt Larissa on a three-day trip to Washington D.C. John did very well, sleeping on flights, quietly enjoying being strolled around the capitol, and even puting up with taxicab rides. He also tolerated being bathed in the hotel sink...

John also loves his aunt lari very much, giggling every time she smiles at him. John and Mom are in El Paso/Las Cruces this week being spoiled by the Grandmas.

Is it only Tuesday?

Ok, we are back.  I've been fighting a migraine since Friday....  It won.  But at least migraines do not last forever.

John is doing great.  He is getting so big.  We are now bathing him in the baby tub without a sling.  He loves to splash his legs and squirm everywhere.  One of his new tricks is to laugh and talk while bathing.  

John after his bath in his froggie towel.

We went to visit our friend Rikki at the hospital today where she is awaiting the birth of her second baby girl.  John took to her from the beginning.  I have not seen him like that with other people.  He was smiling and cooing.  The big flirt was making eyes at her the whole time.

John flirting with Rikki.

He is showing some improvement with his GI problems but we are not in the clear yet.  And today for some reason he began throwing up again.  I am trying to figure out what I ate that bothered him.  This is pretty frustrating.  Poor munchkin.